Alan's Guestbook 2000

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hello alan
hope you are doing well
do not worry
god is alway with you when u need him

as a sporean i am prove of your spirit
u are so brave

life is indeed full of up and down
but no matter what happen
we should be postive

i will go to church to pray for you
if you ever visit singapore or hong kong
please email me as u are my hero

i want to be one of your friend

all my good wishes goes to you and your family

i salute your family for being brave too

god love you and your family

henry in hong kong now

henrytee <henrytee@netvigator.com>
singapore, USA - Wednesday, January 17, 2001 at 03:17:54 (PST)
Good luck!~
Cas Edwards <Pinkqt737@yahoo.com>
Spokane, wa USA - Monday, January 15, 2001 at 10:28:36 (PST)
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asda <asd>
asd, USA - Friday, January 12, 2001 at 04:43:01 (PST)
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dfa <asdf>
dsfa, USA - Friday, January 12, 2001 at 04:40:46 (PST)
Alan,

Wishing you a Happy Millennium! Here's to your persistence and great spirit! May the new year fulfill all your dreams and expectations. Best wishes.

Yvonne Lin <yvonneslin@yahoo.com>
Seattle, WA USA - Friday, January 05, 2001 at 22:23:25 (PST)
Hi Alan

I hope all is still going well with you. I had my BMT for CML @ the Hutch in 93. I am now 60 and feeling better than ever. I have a web site too. It is has changed to http:/oc.itgo.com

Bob Farmer <ocitgo@yahoo.com>
Bremerton, WA USA - Saturday, December 23, 2000 at 09:51:12 (PST)
Alan,

It's great to learn that you are getting healthier and healthier each day. The last email I sent you was in 1997 when you were seeking for marrow donor.

I participated but ours didn't match.

Best wishes,
Willis

Willis Chou <willis5254@yahoo.com>
Fremont, CA USA - Tuesday, December 19, 2000 at 10:16:41 (PST)
Howdy, Alan. I see your literary tone remains the same! :)

C. Crowley

C. Crowley <cc5678@hotmail.com>
Arlington, TX USA - Monday, December 18, 2000 at 20:42:21 (PST)
Dear Alan,
I am 52 and my 58 year old sister was
just diagnosed with Acute Myelogenous
last month. I am being tested as a donor
this coming Wednesday. Thanks for your
words of encouragement. I am a little
scared, but I know it will be okay.
I would love to hear from others who have
been through cancer with family members.

Nancy McIntyre <mcintyre17@home.com>
Milwaukie, OR USA - Sunday, December 17, 2000 at 16:07:33 (PST)
Hi Alan, Thanks for the update and congratulations on your continuing recovery. Blessings on you and yours,
Vic

Vic Aagaard
San Jose, CA USA - Friday, December 15, 2000 at 13:27:04 (PST)
I know exactly how you feel, I have Chronic Myeloid Lukemia since June, 2000 and I am going for my BMT in March 2001......I cant wait and all my best to you!
Cynthia
USA - Thursday, December 14, 2000 at 16:13:56 (PST)
Hi! I am a person of Korean/European heritage, and your page has inspired me to become a marrow donor. Thank you for the information you provided. It made my decision easy.
Michelle Hoover <mimhoove@indiana.edu>
Bloomington, IN USA - Wednesday, November 29, 2000 at 10:11:37 (PST)
Alan,
Thank you for your website. I was diagnosed with CML on 08/22/00. I have started interferon treatment. You website has given me hope and encouragement. Thanks! Craig

Craig Campbell <ccamp80615@aol.com>
USA - Thursday, October 19, 2000 at 22:04:59 (PDT)
Dear Alan: Thanks for this cool and uplifting website!! You have great courage and I find hope with your story, and the visitors' comment. My elder brother, Eric (37) was just diagnosed with CML and is responding well to the first Bout of chemo. Luckily, I am a perfect (all 6 HLA) match so will give him a peice of me (usually, it's just my redheaded opinion). Again,thanks for this warm and informative site. This entire experience has been a real eye-opener for our family. Now, I will always be on the bone marrow donation list. Also, it'll be funny to tease my brother with, "You can't tease me with that - I gave you my marrow!!" All my best, Laura
Laura Jurgensen <laura_jurgensen@fws.gov>
Anchorage, AK USA - Wednesday, October 11, 2000 at 18:44:09 (PDT)
Alan,
I had just discovered that a dear friend of mine was diagnozed with leukemia last Thursday. I had been frantically searching through all related websites to find information on the disease. the worst thing is that I am far from home and can only hope for the best. I have found your website to be both inspirational and informative. You are indeed a brave person and your Ako, a wonderful soulmate to you. Take care.

Xiaoling <sunnata@usa.net>
St. Louis, MO USA - Monday, October 09, 2000 at 02:16:36 (PDT)
HELLO ALLAN, AFTER READING YOUR STORY
I DECIDED THAT I SHOULD GIVE THE GIFT
OF LIFE BY BECOMING A BONE MARROW DONOR.
IT SEEMS THAT HERE IN THE PHILIPPINES
ITS REALLY HARD TO MAKE CONTACTS INVOLVING
HOW TO AND WHERE TO DONATE BONE MARROW
I HOPE THROUGH YOUR SITE SOMEONE WOULD
REACH OUT BEC. IM REALLY INTERESTED...
I GUESS I JUST HAVE TO WAIT.... ILL
WRITE AGAIN JUST IN CASE SOMEONE NOTICED MY LETTER
AND LASTLY, ENJOY YOUR NEW LIFE, AND GOODLUCK!!!!
PEACE.......

donna <donsk_i@hotmail.com>
manila, PHILIPPINES - Monday, October 09, 2000 at 00:27:18 (PDT)
Dear Alan,
I recently learned about your website and just finished reading it. I am THRILLED to find out you are still around! I have thought of you many times since you left WHOI. My best wishes are with you. Stay strong.

Liese Siemann <lsiemann@gis.net>
Hatchville, MA USA - Saturday, October 07, 2000 at 05:30:41 (PDT)
I first read about your story though Asian Avenue(http://www.AsianAvenue.com). I was very disappointed that they never did a follow up, and I was wondering how you were doing and how your battle has progressed. Although you have gone though many hardships, I'm very glad and happy to hear that you were victorious in your battle with cancer. I wish you a wonderful and fruitful life!
eMay_19 <eMay_19@yahoo.com>
San Diego, CA USA - Sunday, August 27, 2000 at 03:53:11 (PDT)
Just an update, Donated bone marrow to a 4yr old boy this last Tuesday (15 August 2000) @ Vanderbilt Hosp.
Thanks again for providing this site to help educate and inform the rest of us. 5 days after donation I'm pretty much back to normal and
will be back to work next week. Thanks Again! Dan Gmyrek

Dan Gmyrek <dgmyrek@mounet.com>
Weber City, Va USA - Sunday, August 20, 2000 at 08:31:17 (PDT)
I'm really glad to hear that you are fine. You really are a very brave person.Could you tell me the symptoms of leukemia? I suspect my friend has leukemia, cos he's really wierd nowadays. His skin is scaly, his toe bleeds from the inside, his hair is oily and full of dandruff, plus, his hair is gradually falling off. I can see a bit of his scalp now. I asked him to go see a doctor but he refuses. I think he has some serious blood problem, especially when his toe started bleeding from underneath the nail and he continued playing football. Please reply me and tell me if he really does has a serious problem and if it is some sort of cancer.
Lastly, all the best to you and Ako. You look and sound a lot like my elder brother, who is unfortunately gone.
All the best to you. :

October <xinenlct@hotmail.com>
sinapore, Singapore - Thursday, August 17, 2000 at 01:48:17 (PDT)
It was very refreshing to here that you
have had so many things done to your body,
and yet your mind is so much together. I
donated 60% of my liver to my husband at
UCSF in January (we were the first adult
to adult ones there). Here my hubby had
been feeling sorry for himself with all
the complications. After reading what you
have had to endure we all felt blessed to
be sitting here together. Good luck, we
will think of you often.

Deborah Gillespie <deborahg@softcom.net>
Modesto, Ca USA - Monday, August 14, 2000 at 03:33:17 (PDT)
Dear Alan, You have been a wonderful person to create this website to be able bring cheer to others. In my country bone marrow transplant from a 3rd party is not able to be carried out. Saddest part is many people are ignorant about bone marrow transplant, thinking that it is dangerous. I have a friend who needs a transplant, yet there is no right match from the family, hopefully he is able to find one through the Taiwan Tzu-Chi bone marrow donor registry. I was being told of your case by a Tzu-chi friend, I am glad I finally found this page tonight. I will be sharing your page with my friend. May you and your family be well and happy always - free of physical and mental sufferings........warmest regards, priscilla
priscillaho <hpriscilla@yahoo.com>
Malaysia - Wednesday, July 26, 2000 at 23:07:43 (PDT)
Alan, a really inspirational site.
Wonderfully written and a joy to browse through.
Please visit our site BMT Support site at
http://www.bmtsupport.ie and read my story. Ambrose

Ambrose <info@bmtsupport.ie>
Dublin, Ireland - Wednesday, July 26, 2000 at 22:29:26 (PDT)
DEAR ALAN I JUST HAD A BMT FOR MY AML ON MARCH
1 2000. I HAVE 2 BROTHERS AND ONLY ONE
MATCHED ME PERFECT I MIGHT ADD. I HAVE BEEN
DOING WONDERFULY MY DOCTOR TOLD ME LAST
WEEK THAT I AM IN REMISSION. BUT I AM NOW
CMV POSITIVE. MY BROTHER AND I BOTH WERE
POSOTIVE FOR THE VIRUS SO I AM BACK ON
GANCICLOVIR. THEY SAY THIS IS NORMAL DID
YOU HAVE THIS PROBLEM?







debbie shafer <dshafer61@hotmail.com>
oh USA - Saturday, July 22, 2000 at 15:26:15 (PDT)
Dear Alan, This is Robin from TASP '80. Scott McLemmee pointed me to your URL. I am so glad to see that you have weathered the storm and kept your indomitable spirit. If you get the opportunity to travel our way, you have a place to stay with us. I'd love to see you again. Our best always to you and Ako and your family. -Robin
Robin J DeWitt Knauth <knauth@lycoming.edu>
Williamsport, PA USA - Thursday, July 20, 2000 at 08:11:07 (PDT)
testing
tester
USA - Friday, July 14, 2000 at 16:39:36 (PDT)
I stumbled across your website like others and I ended up spending over 30 minutes here! :) It is so uplifting to read your story as my mother had breast cancer (now in remission). Your progress and positive spirit is awesome! I am currently a student at UCSD, either pre-vet or PhD and being so frustrated with finals (this coming week!) is stressing me out, but reading your story makes me realize that I couldn't be any luckier to have my health and strive for whatever I want. I pray that you continue to gain health and strength, and keep such an upbeat attitude. God bless!
Janet
San Diego, CA USA - Saturday, June 10, 2000 at 02:26:50 (PDT)
What a blessing to see your site today. Congradultions to you and everyone who was right there with you. Marsha Evans
Marsha J. Evans <marshajevans@cs.com>
Oak island, NC USA - Wednesday, May 31, 2000 at 11:08:53 (PDT)
Hi. I stumbled across your site by complete accident while looking for background on the "Kookaburra" song of all things. Haha. I was very moved by your courage. Congratulations on finding a donor. I will keep you in thoughts and prayers through your journey.

Katrina

Katrina <kajohn345@hotmail.com>
Montreal, PQ Canada - Sunday, May 28, 2000 at 09:47:10 (PDT)
I just stumbled on your site, May 25, 2000.
I was very moved by all that I read. Congratulations
on your success. Thank you for documenting what
you have gone through. I am caucasian, a registered
marrow donor, and in awe of you and all your friends and
family who continue to support you.
- Jim

Jim
- Thursday, May 25, 2000 at 09:36:44 (PDT)
Alan,

This is Steve Shiue from your college class. I have been reading your site periodically ever since I first heard you had CML. I am sorry to hear you have had so many complications such as the osteonecrosis of the hips, but I really admire your courage in dealing with all of this and I think sharing your experiences through this site is valuable for many people.

I just wanted to say that I wish you luck in your continued struggles. I suppose if this were a Hollywood movie you would have found your marrow match, been transplanted, and continued a successful career as an NFL quarterback, but real life doesn't always work that way.

Good luck and keep up the great work on the site. Feel free to drop me a line if you get time. By the way, I still play foosball...

Steve

Steve Shiue <shiue@att.net>
San Diego, CA USA - Saturday, May 20, 2000 at 09:52:10 (PDT)
I look at your book sometimes and I feel
you have helped so many people realize
about giving bone marrow. My daughter
is 4 yrs out from a transplant and doing
well. She has some graft disease but
otherwise doing well. I friend just gave
for the 2nd time. The 1st time was to
a baby. Good going for you. We think
of you often.

Mary <Mollandy@aol.com>
MI USA - Wednesday, April 26, 2000 at 19:04:13 (PDT)
I'm going through the final stage of testing to be a bone marrow donor...it's nice to see someone who has done so well! Thank you for sharing your story.
Dan Gmyrek <dgmyrek@mounet.com>
Weber City, VA USA - Tuesday, April 18, 2000 at 05:48:58 (PDT)
My husband was recently diagnosed with CML and will undergo a transplant within the year. Your story has truly been a source of strength for me. Thank you for your effort. God Bless you and Ako and your loving family!
Dawn <dea983@aol.com>
FL USA - Tuesday, March 07, 2000 at 05:15:22 (PST)
Alan,

What a wonderful story. You are so brave. Thank you for being such an inspiration!

Sharmila Sudhakar <sharmilasudhakar@hotmail.com>
San Francisco, CA USA - Thursday, March 02, 2000 at 16:14:04 (PST)
Alan,
I am very glad that you are celebrating 2 year post-transplant with us. Sad to hear you are having a much tougher time than Ya-Hong. Ya-hong also had a tough time during prednisone tapering. First we could not figure out what was going on and then the side effect was quite difficult to deal with. You if would like to chat with us on this we are very happy to share our experience.
We are glad you are still very up beat about everything.
Marina and Ya-hong.

Marina Xie <xinxin@worldnet.att.net>
Beverly Hills, CA USA - Tuesday, February 15, 2000 at 18:09:37 (PST)
Hi Alan,

First, I'd like to say best of luck to you! I am new to all of this. My sister was just diagnosed last week with ALL. This has turned mine & my families life upside down, as I'm sure you are well aware of. They are going to begin chemotherapy on her within the next few days & are going to be testing my siblings as well as myself for a possible bone marrow donor match. Browsing thru your website has helped me understand a little bit more about this devastating disease. Thanks!

Yvette Eng <yeng587042@aol.com>
stratford, ct USA - Thursday, February 03, 2000 at 19:49:36 (PST)
Dear Alan,

I am extremely moved by the message on your fight with CML. It's so amazing all of the things you had to go through.
I will be presenting your case to my nursing classmates. My hope is that it might help them to not only learn about your
condition but also so that it may help them feel closer to their patients. I have sooo much to learn! Through my studies, I have found that there are people like you, caring souls who want to lend a hand for more people than themselves, that help to make the study of nursing feel that much more of a worthwhile profession. I think that your article has touched many lives. I pray that someday there may be a cure. Until then I pray for all those dealing will illness in their lives whether it be mental, physical, emotional or spiritual. It is every aspect of a person's life that structures who they become. It is how successful they are in making the most of their lives that defines what life means to them.
All the best in making the rest of your life fulfilling and successful.
.....LaVonne

LaVonne Pearson <dimplespearson@hotmail.com>
Searcy, AR USA - Wednesday, January 26, 2000 at 19:34:33 (PST)
I am very sorry.I actually came to this website to do a project. Very shocking. But I cannot do anything. I am only 8.
santos
yishun, singapore - Monday, January 24, 2000 at 06:37:22 (PST)
Alan, Congratulations on your 2-yr anniversary. You had a much tougher time recovering from the bone marrow transplant, & I salut your courage and determination. And happy to know that you have Ako to be there for you all along.

I myself had past my 1-yr anniversary not long ago.

I'm sure we'll be cancer-free and have many more years to live and enjoy life.

Ada <mickyta@aol.com>
san mateo, CA USA - Saturday, January 15, 2000 at 00:48:04 (PST)
Hi Alan,
I was amazed at your courage and determination to fight the disease and your efforts paid off. I am very happy to read of your progress and I'm sure your own experience is a good example to those similarly situated. I am printing some of what you have written so I can give it to a friend having similar health problem with you. I know he can learn a lot from your own narrative.

I know you will have many, many more healthy years ahead of you. Good luck and God bless!

Ramon G. Garanzo <rgaranzo@pacific.net.ph>
Dasmarinas, Cavite, Philippines - Wednesday, January 12, 2000 at 01:00:46 (PST)
Hi Alan, Congratulations on your two years, and being cancer free! Isn't medical technology just amazing? Just wanted to tell you I think it's good to share your aches and pain... I realize it's really tough (I think about the pain my cousin went through during her BMT) and though she was a trooper like you, she was in a lot of pain. Pain is the reality of the process, and I appreciate your sharing that with all of us. I don't see it as anything but being honest. I am very happy for you and your family that the BMT is working! It's been tough, but as you say, it's worth it! Your success gives hope to so many! Thank you for keeping us up to date. Happy New Year!
Jill Kunishige <jillkuni@jps.net>
San Jose , CA USA - Saturday, January 08, 2000 at 15:32:54 (PST)
Hi Alan and Ako... just wanted to stop by and was thrilled to
hear you are still cancer free.. even though you have had to undergo
some hip replacment surgery.. you are still FREE from Cancer. A very very
Happy New Year to you both.. may you live long and prosper (((hugs))))
Your friend Sharon in Toronto.

Sharon Foster <fosters@netrover.com>
Toronto, ON Canada - Thursday, January 06, 2000 at 18:16:00 (PST)




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